This is the absolute worst part of having Ataxia.These migraines feel like no pain I have ever felt before and only people with Ataxia have this type of migraine.
To describe how one feels is really difficult. I have tried! I can describe what happens when I get one.
I will give a real life example of when I had one.
I was in Colombia a few months ago and on my first full day there I got up in the morning to go wander. I was in Cartagena which is ridiculously hot and heat is a trigger for my migraines. I did a coffee tour and then a food tour in the afternoon.
When the food tour began I started to feel really sick. I didn’t think it was a migraine. I thought it was the flu, but the pain became more and more familiar.
Here is what happens when I get one,
I can’t look up or I risk fainting due to dizziness so my head remains down.
My balance gets bad to the point where I can’t even walk. I need to sit.
If I look up, I tilt my head and have to close my eyes because the light makes the pain much worse.
It would look to most people like I am drunk because I swerve when I walk, my eyes are closed, and my head is tilted all the way to the side.
I can’t talk when I get one. My words are slurred.
Once I make it to a bed. I can’t be woken up until it’s over. This could last a few hours to an entire day.
So yeah, this is what happened in Cartagena. I am so happy my accommodation was a short walk away. I have to be incredibly careful when I travel, especially alone. I have had some scary migraine moments like that one.